You have just heard your baby has anophthalmia or microphthalmia (A/M).  This is a difficult time. You may feel overwhelmed with grief and anger. You may instead be saying, the doctors must be wrong somehow.  Or you may be rethinking every step of your pregnancy wondering what you did or did not do that could have caused this to happen.  All of these are normal reactions to such unexpected news.  YOU ARE NOT ALONE!

This website was designed to help you learn more about A/M.  It can help you learn what to expect in the coming days and months.  We realize that many medical professionals may not have ever treated another child with A/M, which can be frustrating. 

We hope the information on this website will help you as you navigate through this confusing and scary time.  Please remember that is all right to ask others for help. Turn to your doctors, friends, family and other support systems who can guide you during this time.  

ican  (international children’s anophthalmia/microphthalmia network) is a support group made up of families and professionals, for families dealing with these issues.  The support group can put you in touch with other families or medical professionals who can help. You can call 1-800-580-ican or go to the support forum link on the left  of this screen to contact other families.