About ican
The International
Children's Anophthalmia & Micropthalmia Network (ican),
a voluntary not-for-profit organization, is a group of families
and professionals dedicated to lending support to individuals
who want to learn more about microphthalmia and anophthalmia
(eyes that are abnormally small, completely absent, or consist
only of vestigial portions).
Etablished
in 1993, ican also enables parents with affected children
to share personal experiences, information, and support;
take advantage of the Network's database of physicians
and educational resources; and learn about ongoing research
and medical issues. ican provides referrals to genetic counseling,
support groups, and other services and promotes professional
and patient education. It provides a variety of educational
and support materials through its computer database, directory,
and regular newsletter.
For parents
who want additional information ASAP:
contact ican
1-800-580-ican
or
e-mail ican@anophthalmia.org
|
