New born wht bi micro.

[mumagain]

Hi, I live in Australia and have a six week old daughter, Ariana with Bi microp. today she received her first conformer. I am so grateful to have found this site with so many positive outlooks. The doctors initially treated my daughter like it was the first time they had ever seen such a case.... This whole experience is a little overwhelming, do any of you have some great advice that got you through the first weeks after your child was diagnosed?

[Hopeful Mommy]

My 6 month old has micro. as well. We learned about it at around 2 months. The fact that you are already using conformers is great. I had to do a lot of research to even learn about that concept. The only advice I have is to do all the research you can through the internet, this site, and contact Tanya ICAN'S medical expert. You will want to get started with therapy early. By therapy, I don't mean for the eye, it is like early intervention therapy to reach normal milestones. For some reason about 20% of micro. cases are delayed and require therapy. I have been told even if your child seems to be doing well demand and accessment every 6 months to prevent being behind. For example my daughter has been a little late rolling over. Now that that is by itself a big deal, but you will want to be on top of it, to prevent it from being an issus. Also, allow your self to grieve and grieve again. I think it is really a process to accept this particular trial. God bless you, I know he will.

[aprilk24]

I've been there and can understand some of what you are going through. I thought my life was over when we found out at 6 days old. Our son was born with bilat micro too. They have told us he may see light/dark, lg objects. He is seeing more and he is a blessing to our family. We've had ups and downs but I will have to say that once you get through the first 6-9 months, all the appointments, questions, etc., things get better. Your child will develop a personality and you won't love something more. We have a caring bridge site that you are welcome to visit. We have pictures of our son Mason and well as a journal that you can read those ups and downs and the answers to questions we have received. caringbridge.org/visit/masonarchibald
Hope that helps. Hang in there! April