kmwilliams
01-13-2008, 01:20 AM
Hello! I have two boys (4yo and 6yo) Diagnosed resently with Lenz Syndrome. It effects the eyes, kidneys, skeleton, and developmental delays. The 6 year old, Tony, has a right micro eye, and bilat. iris, retinal, and, optic nerve colobomas. The 4 year old, Dominick, has degenerative myopia and left eye ptosis. We live outside of Syracuse, New York.