Renal or Kidney problems?

[rim4301]

Hi, my name is Leah aned my son was clinically diagnosed with Fraser Syndrome. I am hopingto get some contact information about the support group. You can e-mail me correctly at rim4301@aol.com
Thank you,Leah

[BethCT]

Hi Sherry, I know we met 7 or more years ago. My daughter is Tori. I think our kids are the same age or close to... I am a social worker for children with kidney problems. I hope Colin is doing well. Please get in touch with me if you want to. I am still trying to find other children that Tori can meet with mircophthalmia. She feels very isolated because she is blind in one eye and has a different appearance. Hope you are all doing well.
Beth

[ariana4]

hello I'm Yerinita, I am new to this site. I saw your message that what posted and I decided to respond. my daughter is 7 years old her name is ariana. We also want to meet other children with micro-opthamia. We live in chicago. My daughter still hasn't met anyone who she can relate to.

[jessica]

Hi my name is jessica and I just got onto this website. I live in northern il, mchenry area. My son is 5. what is up with your daughter? does the only thing she have is mirco? All my sons' drs. are n chicago, who does your daughter see? Sorry for all the questoins, but I've never talked to anyone with the same thing and especially that is so close that we can relate!