Hi, I'm new & I have Microphthalmia

[VicciR]

Just want to introduce myself. I'm Vicci, I live in St. Louis, MO. I'm almost 30 years old & I have Microphthalmia. As a infant up until I was about 10 years old I went to Major & Googleman,( who I think is nation wide) When I was 10 my mom heard of another occularist who opened his practice in town & said we should check him out so we know that we now (then) have options on who to go to. I said ok & we fell in love with the staff! His name is Bruce Cook & I became more comfortable w/ him because he wore a false eye, as well as his secratary. My mom asked me who I wanted to go to & I said Bruce Cook. So we swtched & major & googleman wasn't too happy about it (for obvious reasons). I hope you all have an occularist that you all are happy & comfortable with, especially your children, since this is something to live with for the rest of their lives. I'm sure all the adults here who were prosthetic eyes will agree with me.
*Also to all you parents, understand that your kids will be able to do things in life that most will think that they can't...like driving. They WILL be able to drive, just make sure they have both side rearview mirrors. They'll be able to play sports if they have the drive in them to practice all the time & a little bit harder than those w/ full vision, since single vision people don't have the depth perception. Also just because they have these eye disorders don't mean that their children will. I have a 7 month old & he has both of his eyes & so far great vision.
*If anyone has any ?s or just need a shoulder to vent or cry on you can contact me if you like.
VicciRadake@hotmail.com

[Maria]

Hi, Im new (just joined today) and I have Microphthalmia too. I was so moved by your email message, and wanted to thank you. I have never known people who had this disability, and things have been pretty rough in some areas of life, but now that I can learn about it, I am better.
I liked the tone of your writing... it was so hopeful, and positive. I am 30 too, and I was just thinking today how nice it would be to have a doctor who had the same disability. I am from California, so I can't meet your doctor, but I am so happy for you that you found him. Keep spreading the good news, that we can overcome things on this path... its true, and people need to know. Thank you for writing with so much hopefulness in your words!
God bless you!
:)Maria

[saraault]

I am glad to hear from adults with micro. AS a parent I constantly question what is in store for my daughter as she gets older. Hearing your experiences helps me to calm my fears. Life goes on and we make the best of what we are given. Although it is harder to be a parent of a child with special needs it also is rewarding in it's own way.

thanks!
sara

[suz]

Thank you for your story. My grandson has Microphthalmia and I am so happy to hear he will be able to do most of the "little boy things" we had dreamed about.

[dreamer81]

Hello and welcome! This a great forum to discuss anything and everything with parents and families who are going through so many of the same things. My daughter (age 2) has bilateral anophthalmia and arrhynia sydrome. She is very smart but has a few delays, of which I believe are contributed to her needing a different style of learning vs. a sighted toddler. I try to think of creative ways to teach her the most basic activities but it is pretty frustrating sometimes! The preschool she attends seems to try to be of help, but they just aren't experienced in dealing with blind children.
I hope you enjoy this site and I look forward to conversing with you here in the forum!
~~~~~

[ayresboys]

Hey,
Thanks for your e mail. My son Danny has microphthalmia in his left eye and will be 11 yrs old next week. I have a question for you guys. He has not had his prosthetic eye added to in at least 2 years. Everytime I think it's time to increase the size of his eye the Ocularist tells me it's fine. I've noticed that his top lid is resting right across the middle of his eye. I'm wondering, should I push the ocularist to increase the size of his prosthetic or should I trust their experience?
Thanks
AMY

[maricelda]

Hi Vicci, My Name Is Maricelda And I Have A One Year Old Daughter Named Madison Born With Bilateral Micro. Just Wanted To Tell You That It's So Wonderful To Hear Responses Like Yours. I Often Wonder If Madison Will Have A Pretty Normal Life Like Others, And You Send A Sense Of Relief To Those Who Think The Outcome Can Be The Worst. May You Have A Great Day!!

[juliep]

Its wonderful to hear yor story ,and an inspirstion to parents. My 22 year old daughter has micropthalmia and it didnt stop her doing anything. She took up gymnastics at the age of four and won the under tens, overall championship of her gymnastics club bythe time she was nine. she then repeated this success the following year, followed by many medals in individual apparatus in the following years. All this was done throught sheer determination as her doctors told her she would not be able to co-ordinate her balance, she proved them wrong.