Introduction

[imported_admin]

If you have questions about trying again for a child after having a child with anoph or microphth. you can call the genetic counselor at ALbert Einstein Medical Center who specializes in this and speak to her about the chances and monitoring the next pregnancy. Her name is Tanya Bardakjian and she can be reaches at 215-456-8722

[ohbilatmicromom]

:D
Hello Everyone
My name is Michelle and our son Jalen is now close to 16 months old. He was born with bilateral microphthalmia with cataracts. We had the cataracts removed at about 3 mos of age. Since then his vision has continued to improve. We live in Toledo Oh. I believe I talked to Jodi on the phone. I have lost contact with you, but we have been busy as I am sure you understand. Jalen also had lamboid craniosynostosis and had surgery for that this past August. I just got my conformer newsletter today and was happy to hear of the new website. I found another parent of a child with unilateral micro and we both go to U of M I will have to give her this info. Glad to join and can't wait to start talking.


Hope everyone has a great holiday.
Michelle

[Chandra]

Hello,

My name is Chandra. My son, Ryan, was born on May 7, 2003 with bilateral anophthalmia. Besides being completely blind his is healthy at now 8 months old. He is getting conformers now about every three weeks or so. I am married and have an almost 8 years old son also. We live in Southern California. I would love to hear from families about their experiences. I could also be reached at cneal@amgen.com.

Thanks,
Chandra