juliep
08-25-2007, 04:31 PM
Hi
I am new to this site, I live in Liverpool, England. I have a beautiful 22 year old daughter with micropthalmia in her right eye, and have to say that in 22 years have never come across a support site like this in England.
I have been reading alot of your postings and can empathise with everyone, What I found most common was that everyone felt alone, its not like you are going to bump into many people with this condition at your hospital appointment.
When Kristie was born the paediatrician didnt really have a clue, they thought she was braindamaged as well,which is not the case . She has just become a mother herself. A beautiful baby girl called Laycie, and she has not been affected.
I also have four boys aged 24,16,7 & 6. all of whome have perfect eyesight.
I had genetic councelling when Kristie was born, the outcome of which was that it was environmantal and not Genetic, though no one seems to be able to give a cause.
I have only met two other people with this condition in England, though am sure there are many more, so I would love to hear from anyone.
I am new to this site, I live in Liverpool, England. I have a beautiful 22 year old daughter with micropthalmia in her right eye, and have to say that in 22 years have never come across a support site like this in England.
I have been reading alot of your postings and can empathise with everyone, What I found most common was that everyone felt alone, its not like you are going to bump into many people with this condition at your hospital appointment.
When Kristie was born the paediatrician didnt really have a clue, they thought she was braindamaged as well,which is not the case . She has just become a mother herself. A beautiful baby girl called Laycie, and she has not been affected.
I also have four boys aged 24,16,7 & 6. all of whome have perfect eyesight.
I had genetic councelling when Kristie was born, the outcome of which was that it was environmantal and not Genetic, though no one seems to be able to give a cause.
I have only met two other people with this condition in England, though am sure there are many more, so I would love to hear from anyone.